One of the most important innovations for worthwhile health living may be found at the junction of healthcare with data. Improving and standardizing the myriad of data with healthcare to bring about data driven intelligence is a challenge that is seeing many breakthroughs.
One of the primary, and arguably most important, uses of data with healthcare is to accurately prescribe treatment. The more knowledge a clinician has about available treatments and how well they have worked in similar cases, the higher the probability of the patient having an optimal outcome.
Methods to improve healthcare with data
A key source of knowledge in healthcare comes from the clinical trial, and the results of these trials are usually published in peer reviewed journals. While these publications are key to improving healthcare, the way we manage and process this information is complicated. Pre-Internet, much of it went unseen. Only a limited number of studies were published in a handful of print publications available to the medical community.
With access to the Internet came an avalanche of data, as well as tools we could use to access the data — such as open source journals, online librariesand PubMed. This ability to publish data to a much broader audience prompted growth in funding for even more research. So, the number of studies getting published grew exponentially, which created a new challenge. So much data with healthcare that it became impossible to sift through it all. Looking at cardiac literature alone, one would have to spend four hours every day for the rest of their life to get through all of the publications on that one topic.
Healthcare industry is ripe for disruption by using healthcare with data intelligence.
This “explosion” of published studies creates a continuous flow of new findings to keep up with. We are constantly discovering new medicines, new applications of old medicines, new precautions, and different approaches to patient care. Sydney Burwell, former Dean of Harvard Medical School, hit such a chord with the medical community when he said, “Half of what is taught in medical school will be wrong in 10 years’ time. The problem is we don’t know which half.” So, the first step was getting access to all of the information. Second, was the need to identify which data would be most relevant to a specific case.
Specificity is important in healthcare. Understanding how a treatment plan will likely work on a certain population is key to its success. What works for a geriatric population will likely have a different effect in a pediatric population. Rural and urban populations may have different treatment options available to them. Ethnicities also carry significant implications for how effective treatments will be. For example, we now understand through pharmacogenomics that genetics dictate how individuals may metabolize certain drugs, which then can inform prescribed doses and affect drug efficacy and toxicity. In some places, this is also referred to as personalization of medicine.
This newfound data management ability has also opened a pathway to electronic medical records (EMRs), as well as patient registries that aggregate large datasets of specific groups of patients. Patient registries can aid in differential therapeutic decision making that leads to more accurate treatments, and we are able to continually refine them as datasets grow. Technology has also made it possible for us to take the necessary precautions to protect privacy within these registries. The information is public to researchers, because we are able to strip all records of any personal health information (PHI).
Half of what is known in medical school will be wrong in 10 years. We don’t know which half.
I’ve established one of these registries previously. Each case goes through an application at ClinicalTrials.gov and is added to Agency for Healthcare Research and Quality’s Registry of Patient Registries once it is approved. Then clinicians and researchers have access to and can benefit from the clinical trials performed by other groups, or they have visibility into outcomes of certain interventions conducted in more “real-world” clinical settings. This also allows for research to be leveraged much more broadly than ever before and for clinicians and researchers to test hypotheses without incurring the time and expense of conducing primary research or doing their own data collection.
My dream scenario is one where machine learning is employed to allow a healthcare worker to establish a new patient record that includes an integrative, holistic view of the person,
This blends demographic information, lifestyle factors, comorbidities, genomic information, medication history, procedure history, and activity level. This dataset would then be augmented with information such as payer/insurance benefits, availability of recommended care options, remote monitoring and reporting of patient compliance and activity. An evolving recommended course of treatment would be provided and updated. We’ll basically create a bot that can find and sort through all of the relevant data in real-time and at high speed. It would also yield probabilistic success rates based on subsequent inputs/updates. Wow, would this improve Healthcare with Data.
This isn’t that far away, either.
There are already mobile apps available, like Isabel and CrowdMed, which aggregate and sort healthcare data to deliver possible diagnoses. There are also products like DynaMed that take the differential diagnostic results, and then provide treatment recommendations.
Similarly, Empwr.life is implementing “Empower”, a health app that aggregate and sort through data to personalize recommendations based on a person’s lifestyle and health markers. There are many more ways we will see technology — and specifically data — completely alter the way we deliver healthcare, including the quantified self, Internet of Things (IoT), and even how blockchain technology can be used in EMRs.
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Originally published at geek.ly.